Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Quality of life and functional outcome in Swedish children with low anorectal malformations: a follow-up study.
Karolinska Institutet / Karolinska University Hospital.
The Swedish Red Cross University College, Department of Health Sciences. Karolinska Institutet.ORCID iD: 0000-0002-0221-8631
Karolinska Institutet / Karolinska University Hospital.
Karolinska Institutet / Karolinska University Hospital.
Show others and affiliations
2019 (English)In: Pediatric surgery international (Print), ISSN 0179-0358, E-ISSN 1437-9813, Vol. 35, no 5, p. 583-590Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The aim was to investigate the quality of life and bowel function in children with low anorectal malformations (ARM).

ADDITIONAL AIM: To evaluate the Swedish version the Hirschsprung's Disease/Anorectal Malformation Quality of life Questionnaire (HAQL).

METHODS: Forty-four children and their parents were invited to complete the HAQL and the Bowel Function Score (BFS). Healthy children participated as controls and completed the HAQL.

RESULTS: Seventeen children and 18 mothers completed the HAQL. The children reported impaired function in the physical symptom (PH) fecal continence (FC) and laxative diet (LD) domains compared to controls. Compared with their mothers, they reported impaired physical function and more symptoms in the emotional functioning (EMF) and PH domains. 27 families completed the BFS; 63% reported normal bowel function, 33% moderate outcome and one patient, comprising 4%, poor outcome. Evaluation of the HAQL, FC, EMF and PH domains showed no obvious conflicts.

CONCLUSIONS: The children did not differ much regarding their QoL, even though they appeared to have impaired bowel function and worse emotional functioning compared to controls. The mothers underestimated their children's physical symptoms and overestimated their emotional functioning. Evaluated domains in the HAQL appear to work as intended, but the questionnaire needs further development.

Place, publisher, year, edition, pages
2019. Vol. 35, no 5, p. 583-590
Keywords [en]
ARM, BFS, HAQL, Low anorectal malformations, QoL, Quality of life
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:rkh:diva-2749DOI: 10.1007/s00383-018-04431-8PubMedID: 30729983OAI: oai:DiVA.org:rkh-2749DiVA, id: diva2:1291547
Available from: 2019-02-25 Created: 2019-02-25 Last updated: 2019-06-24Bibliographically approved

Open Access in DiVA

fulltext(589 kB)46 downloads
File information
File name FULLTEXT01.pdfFile size 589 kBChecksum SHA-512
aa72129c205592c51ac0abb1da636b4b893d3c80b556b7d794aa7df4a4c1365109d344e94e722401a4f64e2e13b260075c75177ab359d2af07a637929a6982b7
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedPMC Full text

Search in DiVA

By author/editor
Nisell, Margret
By organisation
Department of Health Sciences
In the same journal
Pediatric surgery international (Print)
Pediatrics

Search outside of DiVA

GoogleGoogle Scholar
Total: 46 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 139 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf