Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Ethical aspects of diagnosis and interventions for children with fetal alcohol Spectrum disorder (FASD) and their families
Karolinska Inst, Dept Learning Informat Management & Eth, Stockholm Ctr Healthcare Eth CHE, Stockholm, Sweden..
Swedish Agcy Hlth Technol Assessment Assessment So, Stockholm, Sweden..
Swedish Agcy Hlth Technol Assessment Assessment So, Stockholm, Sweden..
Swedish Agcy Hlth Technol Assessment Assessment So, Stockholm, Sweden..
Show others and affiliations
2018 (English)In: BMC Medical Ethics, ISSN 1472-6939, E-ISSN 1472-6939, Vol. 19, article id 1Article in journal (Refereed) Published
Abstract [en]

Background: Fetal alcohol spectrum disorders (FASD) is an umbrella term covering several conditions for which alcohol consumption during pregnancy is taken to play a causal role. The benefit of individuals being identified with a condition within FASD remains controversial. The objective of the present study was to identify ethical aspects and consequences of diagnostics, interventions, and family support in relation to FASD.

Methods: Ethical aspects relating to diagnostics, interventions, and family support regarding FASD were compiled and discussed, drawing on a series of discussions with experts in the field, published literature, and medical ethicists.

Results: Several advantages and disadvantages in regards of obtaining a diagnosis or description of the condition were identified. For instance, it provides an explanation and potential preparedness for not yet encountered difficulties, which may play an essential role in acquiring much needed help and support from health care, school, and the socia ! services. There are no interventions specifically evaluated for FASD conditions, but training programs and family support for conditions with symptoms overlapping with FASD, e.g. ADHD, autism, and intellectual disability, are likely to be relevant. Stigmatization, blame, and guilt are potential downsides. There might also be unfortunate prioritization if individuals with equal needs are treated differently depending on whether or not they meet the criteria for a specific condition. Conclusions: The value for the concerned individuals of obtaining a FASD-related description of their condition - for instance, in terms of wellbeing - is not established. Nor is it established that allocating resources based, on whether individuals fulfil FASD-related criteria is justified, compared to allocations directed to the most prominent specific needs.

Place, publisher, year, edition, pages
BIOMED CENTRAL LTD , 2018. Vol. 19, article id 1
Keywords [en]
Alcohol consumption, Alcohol exposition, ARBD, ARND, Diagnostics, Ethics, Family support, Fas, FASD, pFAS
National Category
Medical Ethics
Identifiers
URN: urn:nbn:se:uu:diva-341581DOI: 10.1186/S12910-017-0242-5ISI: 000419520800001PubMedID: 29304784OAI: oai:DiVA.org:uu-341581DiVA, id: diva2:1182615
Funder
Swedish Research CouncilForte, Swedish Research Council for Health, Working Life and Welfare, 2014-4024Available from: 2018-02-14 Created: 2018-02-14 Last updated: 2018-02-14Bibliographically approved

Open Access in DiVA

fulltext(418 kB)18 downloads
File information
File name FULLTEXT01.pdfFile size 418 kBChecksum SHA-512
5908f6bf22bd914484d148eb9b3ed304467a2152dce29f8a51afa26399236e49db02a4355f8f00c53e5aca6525c0508fe89a58bae89af022eafaac82a05311f4
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Nehlin, ChristinaRydell, Ann-MargretSundelin Wahlsten, Viveka
By organisation
Psychiatry, University HospitalDepartment of PsychologyChild and Adolescent Psychiatry
In the same journal
BMC Medical Ethics
Medical Ethics

Search outside of DiVA

GoogleGoogle Scholar
Total: 18 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 155 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf