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Närståendes upplevelser av att bli en informell vårdgivare vid palliativ vård i hemmet.: En litteraturöversikt
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Next-of-kin´s experiences of becoming an informal caregiver of palliative care at home : A literature review (English)
Abstract [sv]

Bakgrund: Palliativ vård innebär en vårdform som syftar till att   främja en god livskvalité för patienter och närstående som drabbats av   obotlig och livshotande sjukdom. Idag föredrar allt fler att vårdas i det   egna hemmet och närstående involveras därför allt mer i vården av patienten.   Att en förtroendefull vårdrelation mellan sjuksköterskan, patienten och   närstående skapas tidigt ligger till grund för en trygg och god palliativ   vård.

Syfte: Att belysa närståendes upplevelser av att bli en   informell vårdgivare vid palliativ vård i hemmet.

Metod: Den valda metoden för studien var en   litteraturöversikt. Utifrån litteratursökningar i databaserna PubMed, CINAHL   Complete och Nursing and Allied Health valdes 11 kvalitativa vetenskapliga   artiklar ut som svarade på syftet. Artiklarna analyserades och tematiserades   enligt Fribergs metod.

Resultat: Resultatet presenterades i fyra teman: Påverkan på den egna livssituationen,   rollförändringen, psykisk och fysisk påverkan. Den upplevda ensamheten i   relation till andra. Betydelsen av stöttande relationer och det betydelsefulla resultatet av att ha   vårdat i hemmet. Den vårdande rollen hade en stor inverkan på närståendes   liv och medförde ofta en känsla av otillräcklighet. De upplevde sig som ensamma   i sin vårdanderoll och upplevelsen av vårdtiden färgades av det stöd de   erhållit. Trots att det var en påfrestande tid var vården i hemmet inget de   ångrat.

Diskussion: Resultatet diskuterades utifrån Bridges   transitionsteori. Närstående var i stort behov av stöd och avlastning och   ansåg sig inte förberedda på vad vården i hemmet innebar i sin helhet. Det   var viktigt att de tillät sig själva tid för återhämtning och tog emot det   stöd som erbjöds. Sjuksköterskans stödjande roll kan vara avgörande i   närståendes förmåga att orka med vården i hemmet.

Abstract [en]

Background: Palliative   care aims to promote a good quality of life for patients who suffer from   incurable and life-threatening illness, and their relatives. Today, more and   more people prefer to be cared for in their own homes, and families are   therefore increasingly involved in the care of the patient. The creation of a   trustworthy relationship between the nurse, patient and next-of.kin´s is the   basis for a safe palliative care.

Aim: To   illuminate next-of-kin´s experiences of becoming an informal caregiver in palliative care at home.

Method: The chosen   method for the study was a literature review. Based on literature searches in the databases PubMed, CINAHL Complete and Nursing and Allied Health, 11   qualitative scientific articles were selected that responded to the purpose.   The articles were analyzed and thematized according to Friberg's method.

Results: The results  were presented in four themes: Impact   on their own life situation, role change, psychological and physical impact.   The perceived loneliness in relation to others. The importance of supportive   relationships and the significant   result of having a home care. The caring role had a major impact on the   lives of the next-of.kin´s and often led to a sense of insufficiency. They   felt lonely in their caring role and the experience of homecare were colored   by the support they received. Although it was a stressful time, the care at   home was nothing they regretted.

Discussion: The result   was discussed based on Bridge's transition theory. Relatives were in great   need of support and relief and did not consider themselves prepared for what   the care at home meant in its entirety. It was important to allow time for   recovery and to accept the support offered to them. The nurses supportive   role can be crucial for the next-of kin´s ability to cope with home care.

Place, publisher, year, edition, pages
2018. , p. 32
Keywords [en]
Transition, Next-of-kin, Informal caregiver, Patient, Palliative care
Keywords [sv]
Transition, Närstående, Informell vårdgivare, Patient, Palliativ vård
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-6603OAI: oai:DiVA.org:esh-6603DiVA, id: diva2:1180086
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2018-02-05 Created: 2018-02-04 Last updated: 2018-02-05Bibliographically approved

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