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Patienters upplevelse av delaktighet i sin vård i livets slutskede: En litteraturöversikt
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Patients’ experiences of participation in their end-of-life care: A literature review (English)
Abstract [sv]

Bakgrund:

80% av de människor som dör varje år i Sverige antas ha varit i behov av palliativa vårdinsatser. För att patienterna ska kunna känna sig delaktiga i sin vård behöver de vara väl informerade om sitt tillstånd. Rapporter visar att inte alla palliativa patienter får ett brytpunktssamtal, vilket ökar risken att patienten inte känner sig delaktig i sin vård. Syfte: Att undersöka patienters upplevelse av delaktighet i sin vård i livets slutskede Metod: Designen är en litteraturöversikt. Datainsamling har skett genom sökningar i databaserna PubMed och CINAHL. Resultat: Resultatet baserades på 15 vetenskapliga artiklar och delades in i fyra kategorier: patientens behov av information, delat beslutsfattande, Patientens preferenser och upplevelse av en god död. De flesta patienter önskade information om sitt tillstånd men inte alla upplevde att de fick detta. Det varierade i hur mycket patienterna ville vara delaktiga i beslutsfattandet. Patienter som önskade delat beslutsfattande upplevde i mindre grad att deras önskningar blev mötta. Konklusion: För att säkerställa att patienterna känner sig delaktiga i sin vård i livets slutskede är det viktigt att se till den enskilda individens behov och anpassa vården utefter dessa, samt vara medveten om att detta kan ändra sig under vårdprocessen.

Abstract [en]

Background:

80% of the people that die every year in Sweden are believed to have benefited from palliative care. In order for patients to be involved in their care, they must be well informed about their condition. Reports show that not all palliative patients get a breakpoint conversation, which increases the risk that patients don’t feel involved in their care.

Aim:

To investigate patients’ experiences of participation in their end-of-life care

Methods:

The design is a literature review. Data collection has been done through searches in the databases PubMed and CINAHL.

Results:

The result was based on 15 scientific articles and were divided into four categories: patients’ need for information, shared decision-making, patients’ preferences, and experience of a good death. Most patients wanted information about their condition, but not everyone felt that they received it. It varied in how much patients wanted to be involved in the decision-making. Patients who wanted shared decision-making felt less that their wishes were met.

Conclusions:

To ensure that patients feel involved in their care, it is important to investigate the individual's needs and to adjust the care accordingly, as well as being aware that this may change over time.

Place, publisher, year, edition, pages
2018.
Keyword [en]
End-of-life care, experiences, palliative care, person-centred care, patient, participation.
Keyword [sv]
Delaktighet, palliativ vård, patient, personcentrerad vård, vård i livets slutskede, upplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-27043OAI: oai:DiVA.org:du-27043DiVA: diva2:1179704
Available from: 2018-02-02 Created: 2018-02-02

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