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De måste åtminstone tro oss: En enkätstudie om hur personer med ME/CFS blir bemötta i primärvården
The Swedish Red Cross University College.
2017 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
They must at least believe us : A survey of how people with ME/CFS are treated in primary care (English)
Abstract [en]

Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a complex disease with unknown cause. It affects about 0.4 percent of the population. It is a chronic disease that manifests itself in an impairment fatigue that is impaired by physical exertion. Purpose: The purpose of the study was to illustrate how people diagnosed with ME/CFS experience the primary care treatment. Method: An empirical questionnaire with mixed method was used. Most questionnaires were quantitative, and one question was qualitative. Result: ME patients may wait several years and meet several doctors before they get their diagnosis. The result showed that most respondents felt that they did not receive good treatment in primary care. Conclusion: People with ME/CFS want to be treated with respect and want primary care to listen and take them seriously. In a partnership between the primary care and healthcare personnel, they could meet more equally, and the ME sufferers would not have to wait several years to meet several doctors before receiving the assistance and support they need in their illness. Clinical significance: New research on how healthcare professionals can help people with ME/CFS is needed. Research would also be needed on how the role of nurse could be extended to be a key part of primary care for people with ME/CFS.

Place, publisher, year, edition, pages
2017. , p. [5], 21, xiii
Keywords [en]
Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Post-Viral Fatigue Syndrome, Exhaustion
Keywords [sv]
Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Post-viralt trötthetssyndrom, Kroniskt trötthetssyndrom, Utmattning
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:rkh:diva-2528OAI: oai:DiVA.org:rkh-2528DiVA, id: diva2:1177359
Educational program
Undergraduate Nursing Program
Uppsok
Medicine
Supervisors
Examiners
Available from: 2018-01-25 Created: 2018-01-25 Last updated: 2018-01-25Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf