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Livets slutskede: En litteraturöversikt om patienters upplevelse av palliativ vård.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
The end of life : A literature review about patients’ experiences of palliative care. (English)
Abstract [sv]

Bakgrund: Palliativ vård består av vård av hela personen när en sjukdom inte längre behandlas. Vården ges med patientens behov och önskemål i fokus. Behovet av palliativ vård kommer att fortsätta växa i förhållande till befolkningens ökade livslängd. Genom att få en djupare kunskap om patienternas erfarenheter skapas en större förståelse för denna patientgrupp. Syfte: Att beskriva patienters upplevelse av palliativ vård. Metod: En litteraturöversikt baserad på 10 vetenskapliga artiklar med kvalitativ design. Resultat: Resultatet presenteras i tre kategorier: Förlorad självbild, Det sociala samspelet samt Transitionen till livets slutskede. Resultatet visar att upplevelsen av palliativ vård är individuell. För många patienter tog det mycket tid och ansträngning att acceptera kroppsliga och sociala förändringar. Slutsats: Resultatet visar att palliativa patienter ofta känner att de förlorat kontroll över sina liv och känner rädsla över att vara en börda för andra. Att tillåta och ta emot hjälp från andra tog tid och ansträngning. Vårdpersonal sågs ofta som en del av familjen, att ha en relation baserad på förtroende och omsorg gav patienterna en positiv upplevelse av palliativ vård.

Abstract [en]

Background: Palliative care consists of the care of the whole person when a disease is no longer curable. The care is given with the patients’ needs and wishes in focus. The need of palliative care will continue to grow in relation to the increased life span of the population. Through deeper knowledge about patients’ experiences, a greater understanding for this patient group is created. Aim: To describe patient’s experiences with palliative care. Method: A literature-review based on 10 qualitative research articles. Results: The result is presented in three main categories: Lost self-image, Social interaction and The transition to the end-of-life. Results show that the experience of palliative care is individual. For many patients, it took a lot of time and effort to accept bodily and social changes. Conclusion: The result show that many patients experience lost control over their lives and fear that they are a burden to others. To allow and accept help from others took time and effort. Healthcare professionals were often seen as a part of the family, and to have a relationship based on trust and care gave patients' a positive experience of palliative care. 

Place, publisher, year, edition, pages
2018. , p. 19
Keywords [en]
Palliative care, end-of-life care, patient perspective, patient experience.
Keywords [sv]
Palliativ vård, vård i livets slutskede, patientperspektiv, patientupplevelse.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-38521ISRN: JU-HHJ-OMA-1-20180257OAI: oai:DiVA.org:hj-38521DiVA, id: diva2:1174248
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2018-01-18 Created: 2018-01-15 Last updated: 2018-01-18Bibliographically approved

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