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Metadata in Digital Preservation and Exchange of Electronic Healthcare Records.
Luleå University of Technology, Department of Computer Science, Electrical and Space Engineering.
Luleå University of Technology, Department of Computer Science, Electrical and Space Engineering.
2017 (English)Independent thesis Advanced level (degree of Master (Two Years)), 20 credits / 30 HE creditsStudent thesis
Abstract [en]

The Swedish National Archives are in charge of the management of Common Specifications (CS). CS are genericmetadata specifications that provides structure and markup when transferring digital information betweeninformation systems and to electronic archives. As of now there is no CS for electronic healthcare records (EHR).Organizations around Sweden have developed their own specifications for transferring healthcare information. Inaddition to that, there are comprehensive international EHR metadata standards established. The Swedish NationalArchives have commissioned a study of EHR metadata specifications and standards to aid in the development of theCS.A Delphi study was conducted, including respondents from major archiving organizations in Sweden, to identifynecessary metadata categories when exchanging EHRs. The data was analyzed considering the international EHRmetadata standards HL7 CDA2 and CEN/ISO EN13606, as well as digital preservation metadata categories. Theresults were a set of metadata categories necessary to include in a CS. In addition, a subset of suggested mandatorymetadata categories is proposed and a list of implications for practice. Clinical codes, auditing, and separatingmetadata related to different contexts are a sample size of the implications.The results were evaluated in an interview with the Swedish National Archives, as well as Sydarkivera. Three criteriafor evaluating the results were proposed, being that the results had to consider a common terminology as well as bebased on a metadata standard and Swedish metadata specifications for EHRs. The interview revealed that the resultssatisfied these criterions, except for requiring a study on one additional user environment of EHRs.

Place, publisher, year, edition, pages
2017. , 52 p.
Keyword [en]
Common Specifications, Metadata, Electronic Healthcare Records, HL7 CDA2, CEN/ISO EN13606, Digital Preservation, Metadata category.
National Category
Computer Systems
Identifiers
URN: urn:nbn:se:ltu:diva-64963OAI: oai:DiVA.org:ltu-64963DiVA: diva2:1129661
External cooperation
Riksarkivet; Sydarkivera
Educational program
Information Security, master's level (120 credits)
Supervisors
Examiners
Available from: 2017-08-09 Created: 2017-08-05 Last updated: 2017-08-09Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf