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Upplevelsen av att vara syskon till ett långvarigt sjukt barn: En litteraturstudie
Halmstad University, School of Health and Welfare.
Halmstad University, School of Health and Welfare.
2017 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
The experience of being a sibling to a child with a chronic disease : A literature study (English)
Abstract [sv]

Det friska barnet påverkas av att leva med ett långvarigt sjukt syskon, precis som det påverkar den övriga familjen. Det är viktigt att sjuksköterskan inkluderar de friska syskonen i vården, ser dem som en del av familjen och hjälper dem få en känsla av sammanhang. Syftet med denna litteraturstudie var att beskriva syskonets upplevelse av att ha en syster eller bror med långvarig fysisk sjukdom. I resultatet inkluderades tio artiklar och ur dem framkom tre teman med underteman. Det första temat var förändring för syskonet med undertema utmaningar för familjen och utmaningar i vardagen. Det andra temat, som uppenbarade sig, var syskonets behov med fyra underteman: behov av familjen, behov i vardagen, behov av kunskap och behov av stöd. Det sista temat var syskonets känslor med följande underteman; känslor runt familjen, känslor runt sig själv, och känslor om omgivningen. Syskonen vill ses som en del av familjen och de upplever att deras syskonrelation fördjupas. De vill vara delaktiga i omvårdnaden av det sjuka barnet och de har ett behov av information om vad de kan göra men även behov av en ökad kunskap runt diagnos, behandling, och prognos.

Abstract [en]

The healthy child is affected by living with a sibling that has a chronic disease the same way as it affects the whole family. It is important that the nurse includes the healthy siblings in the care, sees them as a part of the family and helps them to a sense of coherence. The aim in this literature study was to describe the sibling´s experience of having a brother or sister with a chronic disease. The result includes ten articles and from them three themes with subthemes emerged. The first theme is changes for the sibling with subthemes as challenges for the family and challenges in everyday life. The second theme that emerged was the sibling’s needs with four subthemes: need of the family, need in everyday life, need of knowledge and need of support. The last theme was the sibling´s feelings with the following subthemes: feelings about the family, feelings about themselves and feelings about the environment. The siblings want to be seen as a part of the family and they feel that the sibling relationship deepens. They want to be involved in the care of the sick child and they have a need of information about what they can do, but also the need for increased knowledge about diagnosis, treatment and prognosis. 

Place, publisher, year, edition, pages
2017. , 22 p.
Keyword [en]
Child, chronic disease, experience, nursing, siblings
Keyword [sv]
Barn, långvarig sjukdom, omvårdnad, syskon, upplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-34086OAI: oai:DiVA.org:hh-34086DiVA: diva2:1108622
Subject / course
Nursing
Supervisors
Examiners
Available from: 2017-06-13 Created: 2017-06-12 Last updated: 2017-06-13Bibliographically approved

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