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Living with hypertrophic cardiomyopathy and an implantable defibrillator
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Research and Development, Gävleborg. Karolinska Inst, Karolinska Univ Hospital Solna, Dept Med, Cardiol Res Unit, SE-17176 Stockholm, Sweden.
Uppsala Univ Reg Gavleborg, Ctr Res & Dev, SE-80187 Gavle, Sweden..
Umea Univ, Dept Publ Hlth & Clin Med, SE-90187 Umea, Sweden..
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Research and Development, Gävleborg.
2017 (English)In: BMC Cardiovascular Disorders, ISSN 1471-2261, E-ISSN 1471-2261, Vol. 17, 121Article in journal (Refereed) Published
Abstract [en]

Background: ICDs efficiently terminate life-threatening arrhythmias, but complications occur during long-term follow-up. Patients' own perspective is largely unknown. The aim of the study was to describe experiences of hypertrophic cardiomyopathy (HCM) patients with implantable defibrillators (ICDs).

Methods: We analyzed 26 Swedish patient interviews using hermeneutics and latent content analysis.

Results: Patients (aged 27-76 years) were limited by HCM especially if it deteriorates into heart failure. The ICD implies safety, gratitude, and is accepted as a part of the body even when inappropriate ICD shocks are encountered. Nobody regretted the implant. Both the disease and the ICD affected professional life and leisure time activities, especially at younger ages. Family support was usually strong, but sometimes resulted in overprotection, whereas health care focused on medical issues. Despite limitations, patients adapted, accepted, and managed challenges.

Conclusion: HCM patients with ICDs reported good spirit and hope even though they had to adapt and accept limitations over time.

Place, publisher, year, edition, pages
BIOMED CENTRAL LTD , 2017. Vol. 17, 121
Keyword [en]
Content analysis, Hermeneutics, Hypertrophic Cardiomyopathy, Implantable cardioverter defibrillator, Interview, Qualitative
National Category
Cardiac and Cardiovascular Systems
Identifiers
URN: urn:nbn:se:uu:diva-323025DOI: 10.1186/s12872-017-0553-yISI: 000401027600004PubMedID: 28490380OAI: oai:DiVA.org:uu-323025DiVA: diva2:1104921
Available from: 2017-06-02 Created: 2017-06-02 Last updated: 2017-06-02Bibliographically approved

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