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Upplevelser av chorea och dess påverkan på fysisk aktivitet hos fem personer med Huntingtons sjukdom: En kvalitativ intervjustudie
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Physiotherapy.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Physiotherapy.
2017 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Experiences of chorea and its influence on physical activity in five people with Huntington's disease : A qualitative interview study (English)
Abstract [sv]

Bakgrund: Huntingtons sjukdom innebär ofta såväl motoriska, kognitiva som psykiatriska symtom. Chorea är ett tidigt motoriskt symtom och innebär överrörelser som kan förekomma i hela kroppen. Få studier beskriver den subjektiva upplevelsen av chorea.

 

Syfte: Att undersöka upplevelser av chorea hos fem personer med Huntingtons sjukdom samt att undersöka hur chorean påverkade deras förmåga till fysisk aktivitet. 

 

Design och metod: Explorativ kvalitativ design. Semistrukturerade intervjuer med fem personer med Huntingtons sjukdom. En kvalitativ innehållsanalys användes för databearbetning.

 

Resultat: Utifrån studiens två frågeställningar identifierades tre teman: Att finna sin plats i tillvaron; Att finna sig i förändring; Att omvärdera rörelse. Dessa teman består av nio kategorier: Oro; Vardagliga hinder; En kropp som inte lyder; Förståelse från andra; Ett accepterande förhållningssätt; Omgivning; Att möta motgångar; Hitta rätt tillvägagångssätt; Att inse sina begränsningar.

 

Konklusion: För vissa av informanterna rådde en omedvetenhet kring chorea, medan den för andra låg till grund för stort lidande. De påtalade även hur chorea på olika sätt utgjorde en fysisk begränsning. Detta bör fungera som ett incitament för personcentrering i mötet med personer med Huntingtons sjukdom.

Abstract [en]

Background: Huntington's disease results in a combination of motor, cognitive and psychiatric symptoms. Chorea is an early symptom which entails involuntary movements that can affect various body parts. There are few studies addressing the subjective experiences of having chorea.

 

Purpose: To investigate experiences of having chorea in five people with Huntington's disease and to investigate how the chorea affected their ability to be physically active.

 

Design and method: Explorative qualitative design. Semi-structured interviews of five people with Huntington's disease. A qualitative content analysis was conducted.

Results: Based on the two questions of the study, three themes were identified: Finding your place; Finding yourself in change; Revaluating movement. These themes consist of nine categories: Concern; Everyday obstacles; A disobedient body; Comprehension from others; An accepting approach; Surroundings; Facing setbacks; Finding the right strategies; Realizing your limitations.

 

Conclusion: Some of the informants were unaware of their chorea while in others it caused a great suffering. They also underlined how chorea in different ways could imply a physical limitation. This could function as an incentive for person-centered care when meeting people with Huntington's disease.

Place, publisher, year, edition, pages
2017. , 21 p.
Keyword [en]
Huntington's disease, chorea, physical activity, experiences, interview
Keyword [sv]
Huntingtons sjukdom, chorea, fysisk aktivitet, upplevelser, intervju
National Category
Physiotherapy
Identifiers
URN: urn:nbn:se:uu:diva-322573OAI: oai:DiVA.org:uu-322573DiVA: diva2:1098729
Educational program
Physiotherapy programme
Supervisors
Examiners
Available from: 2017-05-29 Created: 2017-05-26 Last updated: 2017-05-29Bibliographically approved

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