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Psycho-social aspects before and up to 2 years after heart or lung transplantation - experience of patients and their next of kin.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Heart and Medicine Center, Department of Thoracic and Vascular Surgery. Department of Cardiothoracic Surgery, Lund University, Lund, Sweden.
Lund University, Sweden; Skåne University Hospital, Sweden.
Uppsala University, Sweden; Uppsala University Hospital, Sweden.
Caring Science, Uppsala University, Sweden; Uppsala University Hospital, Uppsala, Sweden; Department of Cardiology, Skåne University Hospital Lund, Lund, Sweden.
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2017 (English)In: Clinical Transplantation, ISSN 0902-0063, E-ISSN 1399-0012, Vol. 31, no 3, article id e12905Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Psychosocial factors are important for patients undergoing heart (HTx) or lung (LTx) transplantation, and for their next of kin (NoK).

AIM: To describe health-related quality of life (patients only), anxiety, depression, stress, coping ability and burden (NoK only) for patients and their NoK before and up to 2 years after HTx or LTx.

DESIGN: Adult patients (28 heart and 26 lung) and their appointed NoK were surveyed with questionnaires about specific psychosocial topics when they were accepted for the transplantation waiting list and 6 months, 1 year, and 2 years after transplantation.

FINDINGS: Patients' coping ability and self-perceived health were low at baseline and improved over time after the transplantation. However, lung patients took longer time to recover in terms of health-related quality of life, depression, and stress than heart patients. Similarly, NoK of lung patients experienced a higher burden and more stress 1 year after transplantation than NoK of heart patients.

CONCLUSIONS: Healthcare professionals should be aware of the psychosocial challenges patients and their NoK face in daily living and provide support both before and after heart or lung transplantation. Especially, given that these patients have a serious, chronic, underlying disease. This article is protected by copyright. All rights reserved.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2017. Vol. 31, no 3, article id e12905
Keyword [en]
chronic illness, end-stage cardiac diseases, end-stage lung diseases, family, health-related quality of life, longitudinal study, psychosocial adjustment, transplantation
National Category
Clinical Medicine
Identifiers
URN: urn:nbn:se:liu:diva-133979DOI: 10.1111/ctr.12905ISI: 000395382200017PubMedID: 28039882Scopus ID: 2-s2.0-85012050815OAI: oai:DiVA.org:liu-133979DiVA, id: diva2:1066011
Note

Funding agencies: Skane University Hospital; Region Ostergotland; Dahlback foundation, Lund

Available from: 2017-01-17 Created: 2017-01-17 Last updated: 2018-05-02Bibliographically approved

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