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Vuxna patienters upplevelser av den palliativa vården i hemmet
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
2016 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Varje år dör omkring 90 000 personer i Sverige och de flesta har behov av palliativ vård. Den enskilde individen skall i största möjliga mån få avgöra om denne vill dö hemma eller inom den slutna vården. Historiskt sett har den palliativa vården behandlat personer med cancersjukdom men har med tiden utvecklats till att behandla flera typer av sjukdomstillstånd.

Syfte: Syftet med föreliggande studie var att beskriva hur vuxna patienter upplever den palliativa vården i hemmet, samt att studera de valda artiklarnas datainsamlingsmetod.

Metod: Föreliggande studie har en deskriptiv design. Studiens resultat baseras på elva vetenskapliga artiklar, tio med kvalitativ ansats och en med mixad ansats. Samtliga artiklar granskades av båda författarna och färgmarkerades beroende på innehåll. Artiklarna identifierades genom databaserna Cinahl och Pubmed.

Huvudresultat: Den palliativa vården i hemmet upplevdes till stor del som positiv av patienterna. Det värderades högt att ha sina närstående nära och att få vistas i sin trygga hemmiljö den sista tiden i livet. Det framkom även att de palliativa patienterna var oroliga över att vara en börda för sina närstående. Genom att ha sjukvårdare i hemmet samt stöd från närstående gavs möjlighet att utföra vardagliga aktiviteter på egen hand, som visade sig generera livskvalitet. Värdighet hos de palliativa patienterna beskrevs genom begreppen integritet, välbefinnande och självbestämmande. God kommunikation och kontinuitet upplevdes som viktiga faktorer för de patienterna.

Slutsats: Palliativa patienter som vårdats hemma såg i hög grad positivt på den vård de erhållit. De upplevde att samarbete mellan sjukvården och deras närstående är en förutsättning för trygg vård i hemmet. Hälso- och sjukvård bör prioritera dessa patienters önskan om att få vårdas och dö hemma eftersom detta genererar livskvalitet. Föreliggande studies resultat ger en tydlig indikation på utvecklingsområden inom palliativ vård.

Abstract [en]

Background: Every year, about 90 000 people in Sweden die and most of them are in need of palliative care. The individual should as far as possible be able to decide if he or she wants to die at home or in hospice care. Historically, palliative care was meant to treat people with cancer but has gradually evolved to treat several types of disorders.

Purpose: The purpose of this study was to describe how adults perceive palliative care in their home, as well as to study the selected articles data collection method.

Method: The present study has a descriptive design. The study results are based on eleven scientific articles, ten with qualitative approach, and one with a mixed approach. All articles were reviewed by both authors and color marked depending on the content. The articles were identified through databases CINAHL and Pubmed.

Main Results: The palliative care at home was perceived largely as positive among patients. It was highly valued having their relatives close and to reside in their familiar home environment at the end of life. It also emerged that the palliative patients were concerned about being a burden to their families. By having paramedics in their home as well as support from relatives they were given the opportunity to be able to handle everyday activities on their own, which turned out to generate quality of life. Dignity of the palliative patients was described by the concepts of integrity, well-being and self-determination. Good communication and continuity was seen as important factors for the patients.

Conclusion: Palliative patients who received care at home looked largely positive about the care they received. They felt that the cooperation between health care and their families was essential for safe care in their home. These patients' desire to be cared for and die at home should be a priority as it will lead to increased quality of life. Results of this study gives a clear indication of development areas in palliative care.

Place, publisher, year, edition, pages
2016. , 22 p.
Keyword [en]
Cancer, Home Care Service, Home Health Care, Palliative Care, Patient Perspectives, Patient Experiences
Keyword [sv]
Cancer, Hemsjukvård, Palliativ Vård, Patientperspektiv, Patientupplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-22839OAI: oai:DiVA.org:hig-22839DiVA: diva2:1049651
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2016-11-30 Created: 2016-11-25 Last updated: 2016-11-30Bibliographically approved

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