Digitala Vetenskapliga Arkivet

Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life.
Umeå University, Faculty of Medicine, Department of Nursing. Department of Learning, Informatics, Management and Ethics, Medical Management Center, Karolinska Institutet, SE-171 77 Stockholm Sweden.
Umeå University, Faculty of Medicine, Department of Nursing.
Show others and affiliations
2016 (English)In: Social Science and Medicine, ISSN 0277-9536, E-ISSN 1873-5347, Vol. 168, p. 120-129Article in journal (Refereed) Published
Abstract [en]

The web of relationships between wellbeing and the environments in which people live has long been recognized. However, relatively little research has been conducted about end-of-life surroundings from the perspective of the dying person. In this study, we investigate which aspects of their surroundings are particularly meaningful for the people inhabiting them in the last phases of life, based on participant-produced photographs with follow-up interviews. Twenty-three people were purposefully recruited via specialized in-patient palliative care/hospice units, specialized palliative care home care teams, and residential care facilities for the elderly. Participants were given a digital camera, and asked to take pictures of that which was meaningful for them in their surroundings. The interviewer later viewed the photographs with the participant, asking: "what is this picture of?" and "why is it meaningful to you?" The database consists of 76 photographs with follow-up interviews, which were analyzed qualitatively in an iterative process. These empirical data demonstrate how a sense of being valued, and of being able to maintain contacts with one's daily life and sense of identity appear supported or hindered by features of the care surroundings. These features include a positive aesthetic experience incorporating both sensory stimulation using one's body as well as general ambiance; support appropriate for maintaining a sense of functional independence; and connections with one's past, present and future as a person within a wider world. Corporeality appears crucial for understanding, negotiating and interacting in one's surroundings, while maintaining both physical and social function. This data collection approach was found to offer alternative forms of expression as verbal ability decreases and symptom burden increases, making it useful in end-of-life research and practice development.

Place, publisher, year, edition, pages
2016. Vol. 168, p. 120-129
Keywords [en]
Sweden, Death and dying, End-of-life care, Environment; Hospice, Palliative care, Photo-elicitation, Photo-voice
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-125888DOI: 10.1016/j.socscimed.2016.09.012ISI: 000386186900014PubMedID: 27643846Scopus ID: 2-s2.0-84987870730OAI: oai:DiVA.org:umu-125888DiVA, id: diva2:972530
Note

Special Issue: SI

Available from: 2016-09-21 Created: 2016-09-21 Last updated: 2023-03-23Bibliographically approved

Open Access in DiVA

fulltext(3173 kB)475 downloads
File information
File name FULLTEXT01.pdfFile size 3173 kBChecksum SHA-512
769e758a6f63ed2e0dbdb70b6ef4c3bcce9e5788cfebb73bc3f1bff48e235c6fcf733582b4fc247ae2330e3d84a11da9475cab2e4b2e6ea66fab0456b076cc9e
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Search in DiVA

By author/editor
Lindqvist, OlavHajdarevic, Senada
By organisation
Department of Nursing
In the same journal
Social Science and Medicine
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 475 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 463 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf