Digitala Vetenskapliga Arkivet

Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Going public: reflections on developing the DöBra research program for health-promoting palliative care in Sweden
Umeå University, Faculty of Medicine, Department of Nursing.ORCID iD: 0000-0002-8549-1886
2016 (English)In: Progress in Palliative Care, ISSN 0969-9260, E-ISSN 1743-291X, Vol. 24, no 1, p. 19-24Article in journal (Refereed) Published
Abstract [en]

Introduction: Public health approaches to end-of-life (EoL) research and care are relatively rare in Sweden, and health-promoting palliative care (HPPC) remains a foreign concept for most. We recently consolidated our HPPC endeavors into a cohesive research program, DöBra, to promote constructive change and awareness to support better quality of life and death among the general population, in specific sub-groups, and in interventions directed to professional groups caring for dying individuals, their friends and families.

Objectives: In this article, we aim to share ideas, experiences, and reflections from the early stages of this research program, particularly in relation to how we try to work with new 'publics', to contribute to the development of HPPC as a new research field.

Methods and Results: We discuss some considerations which arise in the Swedish context, and present the underlying ideas and approaches used in the research program, with examples of their application. HPPC, based on ideas from new public health, is essential as an umbrella for the DöBra program. Action research, experience-based co-design, and knowledge exchange, all aim to bring together a variety of stakeholders to exchange ideas and expertise, and co-create experience-based evidence through knowledge generation, dissemination, and sharing.

Discussion: In reflecting on what we have learned about publics and partnerships in EoL research to date, we question distinctions made between professionals and publics, concluding that including publics in public health research, means also including ourselves and making public many of the reflections, the mistakes, and the experiences we all have, to foster collective learning.

Place, publisher, year, edition, pages
2016. Vol. 24, no 1, p. 19-24
Keywords [en]
Action research, End-of-life research, Experience-based co-design, Health-promoting palliative care, Knowledge exchange, Palliative care, Public health
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-121990DOI: 10.1080/09699260.2015.1103497ISI: 000376256700006PubMedID: 27134417Scopus ID: 2-s2.0-84962296696OAI: oai:DiVA.org:umu-121990DiVA, id: diva2:936101
Available from: 2016-06-13 Created: 2016-06-13 Last updated: 2023-03-23Bibliographically approved

Open Access in DiVA

fulltext(466 kB)272 downloads
File information
File name FULLTEXT01.pdfFile size 466 kBChecksum SHA-512
b02a136f0102686b378131e1cb906f47fff4220b639bb96e6d135da0aa25dcaa2164af68dcfa81ae66e612bb990da923500fd0bf3570e3d61d981b780d09e2b8
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Search in DiVA

By author/editor
Lindqvist, Olav
By organisation
Department of Nursing
In the same journal
Progress in Palliative Care
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 272 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 205 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf