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Reflections on using biographical approaches in end-of-life care: dignity therapy as example
Umeå University, Faculty of Medicine, Department of Nursing. Karolinska University Hospital, Sweden.ORCID iD: 0000-0002-8549-1886
2015 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 25, no 1, p. 40-50Article in journal (Refereed) Published
Abstract [en]

The therapeutic potential of nonpharmacologic interventions using biographical approaches at the end of life (EoL) is being increasingly recognized, but less attention is paid to processes impeding realization of this potential. In this article, Swedish and Australian researchers reflect on and problematize experiences using one biographical approach, dignity therapy (DT), in EoL care in Sweden. We use this as an example, focusing on critical examination of the process of applying DT in practice, examining frictions experienced in recruiting participants, collecting the data, and creating a biography. We discuss issues regarding agency, which became evident in the recruitment process and choices made about participation, and the power differentials manifested in the interactive process of eliciting stories and crafting them into a final product. We also raise salient questions about how research and practice with biographical approaches in EoL care might better build on and further existing knowledge to better reflect the complexities of everyday life.

Place, publisher, year, edition, pages
2015. Vol. 25, no 1, p. 40-50
Keywords [en]
death and dying, dignity, end-of-life issues, interviews, life history, palliative care, stories / storytelling
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-109599DOI: 10.1177/1049732314549476ISI: 000346646000005PubMedID: 25189536Scopus ID: 2-s2.0-84918802016OAI: oai:DiVA.org:umu-109599DiVA, id: diva2:858212
Available from: 2015-10-01 Created: 2015-10-01 Last updated: 2018-06-07Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf