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Designing Online Peer Support for Children with Cancer: Research Considerations and Ethical Implications
Högskolan i Halmstad, Akademin för informationsteknologi, Halmstad Embedded and Intelligent Systems Research (EIS), Människa och Informationsteknologi (MI-lab).ORCID-id: 0000-0002-8596-2027
Högskolan i Halmstad, Akademin för informationsteknologi, Halmstad Embedded and Intelligent Systems Research (EIS), Människa och Informationsteknologi (MI-lab).ORCID-id: 0000-0002-8463-4486
Högskolan i Halmstad, Akademin för informationsteknologi, Halmstad Embedded and Intelligent Systems Research (EIS), Människa och Informationsteknologi (MI-lab).ORCID-id: 0000-0001-9439-0764
2012 (Engelska)Konferensbidrag, Publicerat paper (Övrigt vetenskapligt)
Abstract [en]

Social support is essential for a person's capacity to live with a disease. For children, who do not have the same ability as adults to understand and deal with their disease, contact with other children with similar experiences can help them understand their own situation. In this paper we present an ongoing research project with a participatory approach. The challenge is to design online peer support (OPS) for children who have been diagnosed with cancer. The aim of this paper is to identify and shed light on ethical implications and related research considerations when designing a research approach for this sensitive context. Our literature review indicates that there is an apparent lack of research on OPS for supporting children with cancer. It also shows that there is knowledge on considerations to make when designing with children. However, the children in this category are suffering from physical and psychological consequences of their illness. Finally we discuss relevant ethical considerations, of which we highlight sensitivity and respect as most important and comprehensive.

Ort, förlag, år, upplaga, sidor
2012.
Nationell ämneskategori
Systemvetenskap, informationssystem och informatik
Identifikatorer
URN: urn:nbn:se:hh:diva-19343OAI: oai:DiVA.org:hh-19343DiVA, id: diva2:547088
Konferens
35th Information Systems Research Seminar in Scandinavia (IRIS35), Sigtuna, Sweden, August 17-20, 2012
Tillgänglig från: 2012-08-29 Skapad: 2012-08-27 Senast uppdaterad: 2018-03-22Bibliografiskt granskad

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Av författaren/redaktören
Lindberg, SusanneThomsen, MichelÅkesson, Maria
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Människa och Informationsteknologi (MI-lab)
Systemvetenskap, informationssystem och informatik

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