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Applying the ICF-CY to identify everyday life situations of children and youth with disabilities
Högskolan i Jönköping, Högskolan för lärande och kommunikation, HLK, CHILD.
2011 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Four studies were included in this doctoral dissertation aiming to investigatehow habilitation professionals perceive the ICF-CY in clinical work and to identify everyday life situations specific for children and youth aged 0-17 years. The ICF-CY was the conceptual framework and since the research was conducted on as well as with the ICF-CY, the use of the classification runs like a thread through all the work. The design was primarily qualitative and included descriptive and comparative content analyses. Study I was longitudinal, aiming to explore how an implementation of the ICF-CY in Swedish habilitation services was perceived. Studies II-IV were interrelated, aiming to explore children’s most common everyday life situations. Content in measures of participation, professionals’ perspectives, and external data on parents’ perspectives were linked to the ICF-CY and compared. Mixed methods design bridged the Studies III-IV.

Results in Study I indicated that knowledge on the ICF-CY enhanced professionals’ awareness of families’ views of child functioning and pointed to the need for ICF-CY based assessment and intervention methods focusing on child participation in life situations. A first important issue in this respect was to identify everyday life situations. Two sets of ten everyday life situations related to the ICF-CY component Activities and Participation, chapters d3-d9, were compiled and adopted for younger and older children respectively, establishing a difference in context specificity depending on maturity and growing autonomy. Furthermore, key constructs in the ICFCY model were discussed, additional ICF-CY linking rules were presented and suggestions for revisions of the ICF linking rules and the ICF-CY were listed. As the sample of everyday life situations reflects the perspectives of adults, further research has to add the perspective of children and youth. The identified everyday life situations will be the basis for the development of code sets included in a screening tool intended for self- or proxy- report of participation from early childhood through adolescence.

Ort, förlag, år, upplaga, sidor
Jönköping: School of Education and Communication , 2011. , s. 124
Serie
Dissertation. School of Education and Communication, ISSN 1652-7933 ; 14
Serie
Studies from the Swedish Institute for Disability Research, ISSN 1650-1128 ; 39
Nyckelord [en]
Adolescent, child, clasification, code set. disability, everyday life situation, hbilitation, ICF-CY, implementation, interdisciplinary, participation
Nationell ämneskategori
Tvärvetenskapliga studier inom samhällsvetenskap
Identifikatorer
URN: urn:nbn:se:hj:diva-16195ISBN: 978-91-628-8342-3 (tryckt)OAI: oai:DiVA.org:hj-16195DiVA, id: diva2:443678
Disputation
2011-10-21, Högskolan för lärande och kommunikation, Hb116, Högskolan Jönköping, Jönköping, 13:15 (Engelska)
Opponent
Handledare
Tillgänglig från: 2011-09-28 Skapad: 2011-09-26 Senast uppdaterad: 2018-01-12Bibliografiskt granskad
Delarbeten
1. Exploring changes over time in habilitation professionals' perceptions and applications of the International Classification of Functioning, Disability and Health, version for children and youth (ICF-CY)
Öppna denna publikation i ny flik eller fönster >>Exploring changes over time in habilitation professionals' perceptions and applications of the International Classification of Functioning, Disability and Health, version for children and youth (ICF-CY)
Visa övriga...
2010 (Engelska)Ingår i: Journal of Rehabilitation Medicine, ISSN 1650-1977, E-ISSN 1651-2081, Vol. 42, nr 7, s. 670-678Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Objective:This study explored how professionals in interdisciplinary teams perceived the implementation of the World Health Organization’s International Classification of Functioning, Disability and Health, version for Children and Youth (ICF-CY) in Swedish habilitation services.

Design:Descriptive longitudinal mixed-methods design.

Methods:Following participation in a 2-day in-service training on the ICF-CY, 113 professionals from 14 interdisciplinary teams described their perceptions of the implementation of the ICF-CY at 3 consecutive time-points: during in-service training, after 1 year, and after 2.5 years.

Results:Implementation of the ICF-CY in daily work focused on assessment and habilitation planning and required adaptations of routines and materials. The ICF-CY was perceived as useful in supporting analyses and in communication about children’s needs. Professionals also perceived it as contributing to new perspectives on problems and a sharpened focus on participation.

Conclusion:Professionals indicated that the ICF-CY enhanced their awareness of families’ views of child participation, which corresponded to organizational goals for habilitation services. An implementation finding was a lack of tools fitting the comprehensive ICF-CY perspective. The study points to the need for ICF-CY-based assessment and intervention methods focusing on child participation.

Nyckelord
adolescent; child; disability; classification; ICF-CY; implementation; habilitation; interdisciplinary.
Nationell ämneskategori
Socialt arbete
Identifikatorer
urn:nbn:se:hj:diva-12770 (URN)10.2340/16501977-0586 (DOI)
Projekt
I-CY-HAB
Tillgänglig från: 2010-07-08 Skapad: 2010-07-05 Senast uppdaterad: 2017-12-12Bibliografiskt granskad
2. Identifying Child Functioning from an ICF-CY Perspective: Everyday Life Situations Explored in Measures of Participation
Öppna denna publikation i ny flik eller fönster >>Identifying Child Functioning from an ICF-CY Perspective: Everyday Life Situations Explored in Measures of Participation
2011 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 33, nr 13-14, s. 1230-1244Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose. This study was part of a larger work to develop an authentic measure consisting of code sets for self- or proxy-report of child participation. The aim was to identify common everyday life situations of children and youth based on measures of participation.

Method. The study was descriptive in nature and involved several stages: systematic search of literature to find articles presenting measures for children and youth with disabilities, identifying measures in selected articles, linking items in included measures to the ICF-CY, analysing content in measures presented as performance and participation and identifying aggregations of ICF-CY codes across these measures.

Results. A large number of measures for children and youth with disabilities were identified but only 12 fulfilled the inclusion criteria. A slight distinction in content and age appropriateness appeared. Measures presented as performance covered all the ICF-CY Activities and Participation chapters, whereas measures presented as participation covered five of nine chapters. Three common everyday life situations emerged from the measures: Moving around, Engagement in play and Recreation and leisure.

Conclusion. Only a small number of life situations for children and youth emerged from items in selected measures, thus, other sources are needed to identify more everyday life situations.

Nyckelord
adolescent, child, classification, ICF-CY, participation
Nationell ämneskategori
Tvärvetenskapliga studier inom samhällsvetenskap
Identifikatorer
urn:nbn:se:hj:diva-13742 (URN)10.3109/09638288.2010.526163 (DOI)000290950400017 ()20958202 (PubMedID)
Tillgänglig från: 2010-11-18 Skapad: 2010-11-08 Senast uppdaterad: 2018-01-12Bibliografiskt granskad
3. Professionals' views of children's everyday life situations and the relation to participation
Öppna denna publikation i ny flik eller fönster >>Professionals' views of children's everyday life situations and the relation to participation
2012 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 34, nr 7, s. 581-592Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose: The aim was to determine professionals’ views of everyday life situations (ELS) of importance for children and to explore how ELS correlate with the construct ‘Participation’. This study was part of a larger work to develop a structured tool with code sets to identify child participation and support children with disabilities to describe what matters most for them in intervention planning.

Method: The study had a concurrent mixed methods design. Information from one open-ended question and questionnaires were linked to the ICF-CY component Activities and Participation. Two concurrent data sets were compared.

Results: Proposed ELS were distributed across ICF-CY categories from low to high level of complexity and context specificity. The correlation with participation became stronger for the later chapters of the component (d7-d9). Differences between respondents due to working field, country, and children’s ages were explored. Acts and tasks seemed most important for the youngest children whereas ELS shifted towards societal involvement for adolescents.

Conclusion: Eleven categories related to ICF-CY chapters d3-d9 emerged as ELS. Two age groups (infants/preschoolers and adolescents) are required to develop code sets for the new tool. The results need triangulation with other concurrent studies to provide corroborating evidence and add a family perspective.

Nyckelord
adolescent, child, classification, disability, ICF-CY, participation
Nationell ämneskategori
Tvärvetenskapliga studier inom samhällsvetenskap
Identifikatorer
urn:nbn:se:hj:diva-16193 (URN)10.3109/09638288.2011.613519 (DOI)000300259400006 ()21981363 (PubMedID)
Tillgänglig från: 2011-11-14 Skapad: 2011-09-26 Senast uppdaterad: 2018-01-12Bibliografiskt granskad
4. Applying the ICF-CY to identify children's everyday life situations: A step towards participation-focused code sets
Öppna denna publikation i ny flik eller fönster >>Applying the ICF-CY to identify children's everyday life situations: A step towards participation-focused code sets
2013 (Engelska)Ingår i: International Journal of Social Welfare, ISSN 1369-6866, E-ISSN 1468-2397, Vol. 22, nr 2, s. 195-206Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

With the long-term goal to create a screening tool with code sets for children’s everyday life situations (ELS), the purpose of the present study was to identify ELS for children and youth aged 0-17 years. The views of professionals and parents in Sweden, South Africa, and US were integrated based on linkages to ICF-CY. The chapters Self-care and Major life areas seemed most obvious include ELS. At 2nd ICF-CY level, eleven categories emerged as ELS with Hygiene (d510-d530) and Recreation and leisure (d920) as the most obvious. Two sets of ELS were identified for infants/preschoolers and school aged children/adolescents. Professionals and parents agreed on ELS for the older age-group. Findings suggested that ELS differ in context specificity depending on maturity and growing autonomy. The study have implications for the future tool intending to support children with disabilities in describing what matters most for them in intervention planning.

Nyckelord
adolescent, child, disability, classification, ICF-CY, code set
Nationell ämneskategori
Tvärvetenskapliga studier inom samhällsvetenskap
Identifikatorer
urn:nbn:se:hj:diva-16194 (URN)10.1111/j.1468-2397.2012.00876.x (DOI)000315692800009 ()
Forskningsfinansiär
Forte, Forskningsrådet för hälsa, arbetsliv och välfärd
Tillgänglig från: 2011-09-26 Skapad: 2011-09-26 Senast uppdaterad: 2018-01-12Bibliografiskt granskad

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