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The double-edged sword of PCOS and gender: exploring gender-diverse experiences of polycystic ovary syndrome
Univ Toronto, Canada; Univ Illinois, IL 60607 USA.
Univ Toronto, Canada.
Univ Toronto, Canada.
Linköping University, Department of Thematic Studies, The Department of Gender Studies. Linköping University, Faculty of Arts and Sciences. Univ Toronto, Canada; Univ Toronto, Canada; Baycrest Hosp, Canada.ORCID iD: 0000-0002-0770-5471
2024 (English)In: INTERNATIONAL JOURNAL OF TRANSGENDER HEALTH, ISSN 2689-5269, Vol. 25, no 2, p. 251-267Article in journal (Refereed) Published
Abstract [en]

Background: Past research on polycystic ovary syndrome (PCOS), a chronic endocrine condition, has focused on the experiences of cisgender women.Aims: The purpose of the present study was to address the knowledge gap about gender-diverse individuals by exploring their lived experiences with PCOS and to better understand if and how their gender identity affected their experience of PCOS.Methods: To explore this, we recruited nine non-binary people and one transgender man with a PCOS diagnosis for qualitative interviews.Results: Three overarching themes emerged: PCOS as a burden, PCOS as an occasion, and PCOS as a benefit. While some aspects of PCOS created an additional burden for our participants, other symptoms such as excess body and facial hair could be empowering and affirming, revealing a positive aspect of this chronic condition.Conclusion: This study is the first to describe the lived experiences of gender-diverse individuals with PCOS, uncovering burdens as well as some benefits. Future research in this population may reveal not only the particulars of what PCOS is like for them but also more generalizable insights into the highly gendered perception and treatment of PCOS.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS INC , 2024. Vol. 25, no 2, p. 251-267
Keywords [en]
Gender identity; non-binary; polycystic ovary syndrome; qualitative research; transgender
National Category
Gender Studies
Identifiers
URN: urn:nbn:se:liu:diva-192688DOI: 10.1080/26895269.2023.2183448ISI: 000943149100001OAI: oai:DiVA.org:liu-192688DiVA, id: diva2:1746632
Available from: 2023-03-29 Created: 2023-03-29 Last updated: 2024-08-13

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf