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Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naive Swedish context: Action research within the the DoBra research program
Umeå University, Faculty of Medicine, Department of Nursing.
2022 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 46, no 4, p. 803-815Article in journal (Refereed) Published
Abstract [en]

Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DoBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DoBra card items. The DoBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.

Place, publisher, year, edition, pages
Routledge, 2022. Vol. 46, no 4, p. 803-815
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-167092DOI: 10.1080/07481187.2019.1701145ISI: 000503630200001PubMedID: 31858889Scopus ID: 2-s2.0-85076886355OAI: oai:DiVA.org:umu-167092DiVA, id: diva2:1384154
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareVårdal FoundationAvailable from: 2020-01-09 Created: 2020-01-09 Last updated: 2023-03-24Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf