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Family caregivers experiences of the pre-diagnostic stage in frontotemporal dementia
Nord-Trøndelag Hospital, Namsos Hospital, Norway.
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences.ORCID iD: 0000-0002-1614-7379
Nord-Trøndelag Hospital,Namsos Hospital, Norway.
Högskolan i Gävle.
2018 (English)In: Geriatric Nursing, ISSN 0197-4572, E-ISSN 1528-3984Article in journal (Refereed) Epub ahead of print
Abstract [en]

Frontotemporal dementia (FTD)is a neurodegenerative disease with symptoms that differs from other dementias. Commonly early symptoms in FTD are changes in personality and behavior, which can be interpreted as psychiatric disease. The delay in FTD diagnos is contributes to the burden of family caregivers. Therefore, it is important to have more knowledge about the pre-diagnostic stage. In this qualitative interview study, we explored fourteen family caregiver's experiences of the pre-diagnostic stage of frontotemporal dementia (FTD). Our findings suggest that the family caregivers experienced the pre-diagnostic stage of FTD as changes in the interpersonal relationship with their loved one.  These changes were often subtle and difficult for family caregivers to explain to others. The findings from our study illuminate the importance of medical staff paying attention when a next of kin is concerned about subtle changes in a loved one. The findings also illuminate that awareness of FTD should be raised.

Place, publisher, year, edition, pages
2018.
National Category
Medical and Health Sciences
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URN: urn:nbn:se:miun:diva-35080DOI: 10.1016/j.gerinurse.2018.10.006OAI: oai:DiVA.org:miun-35080DiVA, id: diva2:1268604
Available from: 2018-12-06 Created: 2018-12-06 Last updated: 2018-12-10Bibliographically approved

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Citation style
  • apa
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