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Evaluating the Swedish Dignity Care Intervention within municipality healthcare: for older persons with palliative care needs
Örebro universitet, Institutionen för hälsovetenskaper.ORCID-id: 0000-0002-8661-004x
2021 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Background: Palliative care in Sweden is not equal in terms of age, disease, and place of care. An essential value within palliative care is dignity, therefore healthcare emphasizing this value must be prioritized. However, older persons are concerned their dignity would not be considered and dignity interventions are rare. The overall aim of the thesis was to evaluate the Swedish Dignity Care Intervention (DCI-SWE) and its implementation within municipal palliative healthcare in order to conserve older persons’ dignity and quality of life. Methods: Qualitative and mixed methods were used. Data were collected with an integrative review (study I), focus group and individual interviews with community nurses (CNs) (studies II, IV), healthcare professionals and managers (study IV), individual interviews with older persons and relatives (study III), reflective diaries and field notes (studies II, IV), and questionnaires measuring older persons’ dignity-related distress and quality of life (study III). Data were analysed using thematic synthesis (study I), inductive content analysis(study II), inductive thematic analysis and comparative statistical analysis (study III), directed content analysis and descriptive statistical analysis (study IV). Results: Within dignity-conserving care, broad outcomes like dignity-related distress and quality of life have been used. However, communication outcomes should also be considered (study I). The DCISWE has clear benefits if it is used with background of who the older person is and with respect of personal needs (studies II - IV). The feasibility of the DCI-SWE depends on the healthcare organization’s engagement and capacity (studies II, IV). The DCI-SWE can support CNs in communicating with older persons (studies II, IV). However, more communication training is needed, and managers leadership is an important component (studies II, IV). The implementation intervention needs further development, and the use of a behavior change model may be beneficial. 

Ort, förlag, år, upplaga, sidor
Örebro: Örebro University , 2021. , s. 137
Serie
Örebro Studies in Medicine, ISSN 1652-4063 ; 242
Nyckelord [en]
Community-based healthcare, Dignity, Evaluation, Implementation, Intervention, Older persons, Palliative care
Nationell ämneskategori
Annan hälsovetenskap
Identifikatorer
URN: urn:nbn:se:oru:diva-92383ISBN: 978-91-7529-380-6 (tryckt)OAI: oai:DiVA.org:oru-92383DiVA, id: diva2:1567212
Disputation
2021-09-17, Örebro universitet, Forumhuset, Hörsal F, Fakultetsgatan 1, Örebro, 09:00 (Svenska)
Opponent
Handledare
Tillgänglig från: 2021-06-16 Skapad: 2021-06-16 Senast uppdaterad: 2021-09-01Bibliografiskt granskad
Delarbeten
1. Dignity-conserving care for persons with palliative care needs - identifying outcomes studied in research: An integrative review
Öppna denna publikation i ny flik eller fönster >>Dignity-conserving care for persons with palliative care needs - identifying outcomes studied in research: An integrative review
2020 (Engelska)Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 18, nr 6, s. 722-740Artikel, forskningsöversikt (Refereegranskat) Published
Abstract [en]

OBJECTIVES: With people living longer, palliative care may be required for lengthier periods of time. This puts demands on healthcare organizations to provide optimal palliative care. Maintaining dignity is central for any person's health and quality of life, but especially for a person with palliative care needs. Dignity-conserving care needs to be evaluated to increase knowledge about outcomes and how to assess these. The purpose of this integrative review was to identify outcomes studied within dignity-conserving care and how these have been operationalized.

METHODS: An integrative review was conducted in 26 quantitative or mixed-method studies and study protocols. Thematic synthesis with an abductive approach was used for analysis.

RESULTS: Seven themes of studied outcomes were identified, as well as four cluster themes: themes related to Illness-Related Concerns, themes related to the Dignity-Conserving Repertoire, themes related to the Social Dignity Inventory, and themes regarding Overarching Dignity Issues. Most outcomes studied dealt with Illness-Related Concerns within the themes of "Performance, symptoms and emotional concerns" and "End-of-life and existential aspects". Themes linked to the Social Dignity Inventory had the lowest number of outcomes studied. Outcomes regarding overarching dignity issues such as "Dignity-related distress" and "Quality of life" were common. However, the results lacked concrete communication outcomes.

SIGNIFICANCE OF RESULTS: The results will underpin future research in which dignity-conserving care is implemented and evaluated, and contribute to the provision of evidence-based palliative care. A greater focus on outcomes within cluster themes related to the Dignity-Conserving Repertoire and the Social Dignity Inventory is needed, as is more focus on communication outcomes.

Ort, förlag, år, upplaga, sidor
Cambridge University Press, 2020
Nyckelord
Dignity-conserving care, Human dignity, Outcome assessment, Palliative care, Review
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:oru:diva-80481 (URN)10.1017/S1478951520000139 (DOI)000604909900014 ()32131926 (PubMedID)2-s2.0-85082091480 (Scopus ID)
Anmärkning

Funding Agency:

Research School of Successful Ageing at Örebro University, Örebro, Sweden 

Tillgänglig från: 2020-03-09 Skapad: 2020-03-09 Senast uppdaterad: 2021-09-01Bibliografiskt granskad
2. Community nurses' experiences of the Swedish Dignity Care Intervention for older persons with palliative care needs: A qualitative feasibility study in municipal home health care
Öppna denna publikation i ny flik eller fönster >>Community nurses' experiences of the Swedish Dignity Care Intervention for older persons with palliative care needs: A qualitative feasibility study in municipal home health care
2021 (Engelska)Ingår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 16, nr 4, artikel-id e12372Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

OBJECTIVES: The Swedish Dignity Care Intervention (DCI-SWE) is an intervention for people with palliative care needs to enhance their dignity. The original DCI was developed in Scotland, where it was tested by nurses in municipal care. In this study, the DCI has been tested for the first time in a Swedish home health care context. The aim was to describe experiences of the DCI-SWE from the perspectives of community nurses (CNs).

METHODS: This was a feasibility study with a qualitative design. Three focus group interviews and one individual interview were performed with CNs (n = 11). Reflective diaries and field notes were written by the CNs and researchers, respectively. Data were analysed using inductive content analysis.

RESULTS: Two main categories and six subcategories were identified. The first main category, 'Practising the palliative approach while responding to palliative care needs', consisted of the subcategories: gives structure while providing palliative care; gives older people opportunities to be confirmed; and responding to existential and sensitive needs. The second main category, 'Aspects influencing the use of the DCI-SWE' had two subcategories about facilitators and barriers to the use of the DCI-SWE, and another about how to establish the DCI-SWE in the context of home health care.

CONCLUSION: The DCI-SWE offers CNs an overview of older people's concerns while providing palliative care, and gives the older people opportunities to be listened to. Essential prerequisites for using the DCI-SWE in municipal home health care are that CNs are comfortable holding conversations and are given time and space for these by the organisation. Other aspects facilitating the use of the DCI-SWE are managers' engagement and support, continuing training for CNs and CNs' opportunities for reflection.

Ort, förlag, år, upplaga, sidor
Blackwell Publishing, 2021
Nyckelord
Community nurses, dignity, feasibility studies, home care services, older people, palliative care
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:oru:diva-90456 (URN)10.1111/opn.12372 (DOI)000628320700001 ()33713554 (PubMedID)2-s2.0-85102420679 (Scopus ID)
Anmärkning

Funding Agency:

Research School of Successful Ageing, Örebro University, Örebro, Sweden  

Tillgänglig från: 2021-03-16 Skapad: 2021-03-16 Senast uppdaterad: 2021-09-01Bibliografiskt granskad
3. To value the individual - older persons and their relatives experiences when using the Swedish Dignity Care Intervention in municipal palliative health care: a mixed method study
Öppna denna publikation i ny flik eller fönster >>To value the individual - older persons and their relatives experiences when using the Swedish Dignity Care Intervention in municipal palliative health care: a mixed method study
(Engelska)Manuskript (preprint) (Övrigt vetenskapligt)
Nationell ämneskategori
Annan hälsovetenskap
Identifikatorer
urn:nbn:se:oru:diva-93871 (URN)
Tillgänglig från: 2021-08-24 Skapad: 2021-08-24 Senast uppdaterad: 2021-08-24Bibliografiskt granskad
4. Maintaining older persons’ dignity: A process evaluation of the Swedish Dignity Care Intervention in municipal palliative care
Öppna denna publikation i ny flik eller fönster >>Maintaining older persons’ dignity: A process evaluation of the Swedish Dignity Care Intervention in municipal palliative care
Visa övriga...
(Engelska)Manuskript (preprint) (Övrigt vetenskapligt)
Nationell ämneskategori
Annan hälsovetenskap
Identifikatorer
urn:nbn:se:oru:diva-93873 (URN)
Tillgänglig från: 2021-08-24 Skapad: 2021-08-24 Senast uppdaterad: 2021-08-24Bibliografiskt granskad

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