Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Swedish Inflammatory Bowel Disease Register (SWIBREG): a nationwide quality register
Karolinska Inst, Sweden; Orebro Univ Hosp, Sweden; Univ Nottingham, England; Columbia Univ, NY USA.
Sodra Alvsborgs Hosp, Sweden.
Sahlgrens Univ Hosp, Sweden.
Karolinska Inst, Sweden.
Vise andre og tillknytning
2019 (engelsk)Inngår i: Scandinavian Journal of Gastroenterology, ISSN 0036-5521, E-ISSN 1502-7708, Vol. 54, nr 9, s. 1089-1101Artikkel, forskningsoversikt (Fagfellevurdert) Published
Abstract [en]

Background: Inflammatory bowel disease (IBD) is a chronic, inflammatory relapsing disease with increasing incidence. IBD research and long-term follow-up of patients have, however, been hampered by lack of detailed data on disease phenotype, patient-reported outcome measures, Physician Global Assessment, disease activity, and hospital-administered drugs. Aim: To review the Swedish IBD quality register (SWIBREG). Methods: Review of SWIBREG including questionnaire data from users and patients. Results: SWIBREG was launched in 2005, and as of April 2019, contains 46,400 patients with IBD (Crohns disease: n = 15,705, ulcerative colitis: n = 21,540, IBD unclassified and other colitis (including e.g., microscopic colitis): n = 9155). Of these IBD patients, 7778 had been diagnosed in childhood (16.8%). Earlier research has shown that combining SWIBREG and the Swedish National Patient Register (NPR) yields a positive predictive value of 100% (95%CI = 95-100%) for having a diagnosis of IBD. Moreover, out of all patients in the NPR with a diagnosis of IBD plus either IBD-related surgery or immunomodulatory/biological treatment during the past 18 months, SWIBREG covers 59.0%. SWIBREG records not only information on conventional therapies but also on biological treatment, surgery, smoking, disease activity, patient-reported outcome measures (PROMs), and patient-experienced measures (PREMs). Data are presented through a graphical decision support system. Conclusion: SWIBREG benefits patients with IBD, and offers an ideal opportunity for healthcare personnel and researchers to examine disease phenotype and activity, PROMs/PREMs, and hospital-administered drugs in patients with IBD.

sted, utgiver, år, opplag, sider
Taylor & Francis, 2019. Vol. 54, nr 9, s. 1089-1101
Emneord [en]
Inflammatory bowel disease; Crohns disease; ulcerative colitis; patient reported outcome measure; patient reported experience measure; quality of life
HSV kategori
Identifikatorer
URN: urn:nbn:se:liu:diva-160593DOI: 10.1080/00365521.2019.1660799ISI: 000485641200001PubMedID: 31498717Scopus ID: 2-s2.0-85072067137OAI: oai:DiVA.org:liu-160593DiVA, id: diva2:1355927
Merknad

Funding Agencies|Janssen Corporation; Swedish Association of Local Authorities and Regions (SALAR; Swedish: SKL)

Tilgjengelig fra: 2019-09-30 Laget: 2019-09-30 Sist oppdatert: 2019-12-03bibliografisk kontrollert

Open Access i DiVA

fulltext(2341 kB)16 nedlastinger
Filinformasjon
Fil FULLTEXT01.pdfFilstørrelse 2341 kBChecksum SHA-512
8df7fd6ff43392715b9159b9d5146df69404b03a798692181a6090e47e92d368446910e43a1b3388b6340319d4ba1ab4cc028bd3626de494d3ea1d3fca5ed569
Type fulltextMimetype application/pdf

Andre lenker

Forlagets fulltekstPubMedScopus

Søk i DiVA

Av forfatter/redaktør
Hjortswang, HenrikOlsson, MalinMyrelid, Pär
Av organisasjonen
I samme tidsskrift
Scandinavian Journal of Gastroenterology

Søk utenfor DiVA

GoogleGoogle Scholar
Totalt: 16 nedlastinger
Antall nedlastinger er summen av alle nedlastinger av alle fulltekster. Det kan for eksempel være tidligere versjoner som er ikke lenger tilgjengelige

doi
pubmed
urn-nbn

Altmetric

doi
pubmed
urn-nbn
Totalt: 15 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf