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Urinary incontinence: prevalence, treatment seeking behaviour, experiences, and perceptions among persons with and without urinary leakage
Örebro University, School of Health and Medical Sciences.ORCID iD: 0000-0002-9062-8840
2009 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis is to describe urinary incontinence (UI) from a population perspective and to describe experiences and perceptions of UI from an individual perspective. This includes assessing the prevalence of urinary incontinence as well as describing treatment seeking and experiences of living with UI. A secondary aim was to describe the perception of UI among cultures other than the Swedish mainstream, exemplified in this case by Syrian women living in Sweden. Both quantitative and qualitative methods were used, including questionnaires and interviews.

Studies I and II were quantitative studies based on a population-based study. Together with a postal survey on general health and living conditions “Life & Health”, a questionnaire on urinary incontinence was sent out to 15 360 randomly-selected residents aged 18-79 in Orebro County, Sweden. In Study I, UI was found to affect 19%. The majority of the respondents experienced minor problems, and only 18% of those reporting UI wanted treatment. However, there was also a group who reported severe problems, but despite this 42% of them did not want treatment. Study II investigated why people with UI refrain from seeking care and treatment. It was found that the desire for treatment was regulated by the frequency of UI, being restricted from participating in various activities, the degree of inconvenience, and the type of UI.

Studies III and IV were both qualitative interview studies, describing older women’s experiences of living with UI (Study III) and Syrian women’s perceptions of UI (Study IV). There were similarities between the results of these two studies; the women described UI as a normal and expected problem, and they knew that the district nurse could prescribe incontinence protections and that treatments existed. In both studies, the women expressed difficulties in making contact with the health care service, while the women who did not speak Swedish (Study IV) also had difficulties due to different communication problems.

In conclusion, it is important that health care resources are optimized to identify and meet the needs of those who experience major problems with UI, and that there is awareness of the communication difficulties that can be present in meeting with people who speak other languages. However it is also important not to medicalize those who experience minor problems and who have the desire to manage on their own.

Place, publisher, year, edition, pages
Örebro: Örebro universitet , 2009. , 69 p.
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 26
Keyword [en]
UI, prevalence, impact on daily life, healthcare-seeking, cultural study
National Category
Clinical Science Surgery
Research subject
Surgery
Identifiers
URN: urn:nbn:se:oru:diva-2713ISBN: 978-91-7668-646-1 (print)OAI: oai:DiVA.org:oru-2713DiVA: diva2:136597
Public defence
2009-02-12, Wilandersalen, M-huset, Universitetssjukhuset, 70185 Örebro, 09:00 (English)
Opponent
Supervisors
Available from: 2009-01-12 Created: 2009-01-12 Last updated: 2017-10-18Bibliographically approved
List of papers
1. Urinary incontinence: prevalence, impact on daily living and desire for treatment : a population-based study
Open this publication in new window or tab >>Urinary incontinence: prevalence, impact on daily living and desire for treatment : a population-based study
2004 (English)In: Scandinavian journal of urology and nephrology, ISSN 0036-5599, Vol. 38, no 2, 125-130 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE:

To investigate the prevalence of urinary incontinence in a representative population in Sweden, and to assess to what extent the condition affects daily life and to what degree those afflicted desire treatment.

MATERIAL AND METHODS:

In a population-based study, a postal questionnaire comprising 12 questions on urinary incontinence was sent to a representative sample of 15 360 randomly selected residents (aged 18-79 years) of Orebro County, Sweden. This was a supplement to a comprehensive survey of public health and general living conditions.

RESULTS:

The response rate was 64.5%. The prevalence of urinary incontinence was 19% when defined as "any leakage" and 7% when defined as "at least once a week". Women were more afflicted than men, and the proportion of people with urinary incontinence increased markedly with increasing age. Most considered their problems to be minor, having little impact on daily life, which was reflected by the fact that only 18% of those with urinary incontinence desired treatment. About 17% of those with urinary incontinence reported severe problems that interfered with daily life. Of respondents with severe problems, 42% did not want treatment.

CONCLUSION:

According to this population-based study, urinary incontinence is not a major problem for most people in the community. Although a considerable proportion of the population report urinary incontinence, the majority experience minor problems and only 18% desire treatment. For a limited group of people, urinary incontinence is a severe problem. It is important that healthcare resources are optimized to identify and meet the needs of those who are most afflicted.

Keyword
impact on daily life, population‐based study, prevalence, urinary incontinence Read More: http://informahealthcare.com/doi/abs/10.1080/00365590310022608
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-3043 (URN)10.1080/00365590310022608 (DOI)10.1080/00365590310022608 ()15204395 (PubMedID)2-s2.0-1942422250 (Scopus ID)
Available from: 2009-01-12 Created: 2009-01-12 Last updated: 2017-10-18Bibliographically approved
2. Urinary incontinence - why refraining from treatment?: a population based study
Open this publication in new window or tab >>Urinary incontinence - why refraining from treatment?: a population based study
Show others...
2005 (English)In: Scandinavian Journal of Urology and Nephrology, ISSN 0036-5599, E-ISSN 1651-2065, Vol. 39, no 4, 301-307 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To investigate why persons with urinary incontinence (UI) refrain from seeking care and treatment.

MATERIAL AND METHODS: A population-based study was undertaken in which a public health survey and a specific UI questionnaire were sent to 15 360 randomly selected residents (age 18-79 years) of Orebro County, Sweden. For all persons reporting UI, the expressed wish for treatment or no treatment was analyzed in relation to relevant variables from both inquiry forms using binary logistic regression analysis.

RESULTS: The response rate was 64.5%. UI was reported by 2194 persons, 1724 of whom comprised the study population. A statistically significant association was found between the degree of UI and a desire for treatment. Persons who did not experience daily leakage and those who did not perceive the leakage as troublesome or having an affect on their daily life mostly stated that they did not desire treatment. Socioeconomic or other health-related factors were not associated with desiring or not desiring treatment for UI.

CONCLUSIONS: Our results show that it is the perceived severity of UI that determines whether afflicted persons desire treatment or not. Other factors, relating to seeking healthcare in general, were not found to be of importance. Interventions to identify those in need of treatment for UI should primarily be directed towards those with severe symptoms.

Place, publisher, year, edition, pages
London: Taylor & Francis, 2005
Keyword
: Healthcare-seeking behavior, population-based study, urinary incontinence
National Category
Medical and Health Sciences Urology and Nephrology Nursing
Research subject
Medicine; Nursing Science
Identifiers
urn:nbn:se:oru:diva-4540 (URN)10.1080/00365590510031129 (DOI)000231453100007 ()16118105 (PubMedID)2-s2.0-27144476977 (Scopus ID)
Note

Part of thesis: http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-2713

Available from: 2008-04-14 Created: 2008-04-14 Last updated: 2017-10-18Bibliographically approved
3. Accepting and adjusting: Older women´s experiences of living with urinary incontinence
Open this publication in new window or tab >>Accepting and adjusting: Older women´s experiences of living with urinary incontinence
2008 (English)In: Urologic Nursing, ISSN 1053-816X, Vol. 28, no 2, 115-121 p.Article in journal (Refereed) Published
Abstract [en]

In-depth interviews were performed with 11 Swedish women who contacted a district nurse to obtain sanitary protection. Three key constituents (themes) emerged: "learning to live with it despite difficulties," "other illnesses are more important," and "reluctance to seek care." The essence of the phenomenon of living with urinary incontinence (Ul) was expressed as "a situation to accept and adjust to."

National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-3045 (URN)- ()18488587 (PubMedID)2-s2.0-45849087670 (Scopus ID)
Note

Part of thesis: http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-2713

Funding agency:Orebro CountyCouncil's Research Fund

Available from: 2009-01-12 Created: 2009-01-12 Last updated: 2017-10-18Bibliographically approved
4. Perceptions of urinary incontinence among syrian Christian women living in Sweden
Open this publication in new window or tab >>Perceptions of urinary incontinence among syrian Christian women living in Sweden
2009 (English)In: Journal of Transcultural Nursing, ISSN 1043-6596, E-ISSN 1552-7832, Vol. 20, no 3, 296-303 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to describe the perception of urinary incontinence (UI) among Syrian women living in Sweden. DESIGN: A qualitative, descriptive design with focus group discussions (FGDs) was used and analyzed with content analysis. Fourteen Syrian women were interviewed in three FGDs. FINDINGS: Three categories emerged, "Thoughts on UI," "Managing UI," and "Communication With the Health Care System." Among the interviewees, UI was a common, and expected, problem, which could be managed. However, some expressed shame and embarrassment. Some talked about communication problems with health care. DISCUSSION: and Implications for Practice: The health care system should be adjusted to the women's needs, with awareness of the communication difficulties, which could result in misunderstanding and neglected treatments.

Keyword
urinary incontinence, ethnic group, interpreter, focus group discussion, psychosocial factors
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-7355 (URN)10.1177/1043659609334850 (DOI)000267504000005 ()19372538 (PubMedID)2-s2.0-67650503250 (Scopus ID)
Available from: 2009-06-22 Created: 2009-06-22 Last updated: 2017-10-18Bibliographically approved

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